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brief version

Overview (Oversikt)

2001.10.29    get sick (insjukade)
2001.10.30 ~ 2002.2.25 ICU (IVA)
  Treatment 11.1~11.7 (every other day) Plasma Exchange 2500ml
11.7~11.11 (dayly) IVIg 30g & Solu-Medrol 0.5ml
12.14~12.18 (dayly) Gamma-globulin
2002.2.25 ~ 2002.11.1 Rehab division
2002.11 ~ 2003.5 home (hemma)
2003.6 ~ 2004.4 work 50% (arbeta 50%)
2004.5 ~ work 75% (arbeta 75%)
==============================================


rehabilitation program
  ~3 weeks 4 months 8 months 1.0 year 1.6 years 2.0 years 2.5 years 3.0 years 3.5 years 4.0 years 4.5 years 5.0 years 6.0 years 7.0 years 8.0 years 10.0 years
Softing (KP) 1 hr/day
shoulder, arm, finger, leg
20 min/day
shoulder, arm, leg
20 min/day
shoulder, arm, leg
50min x 2/day
shoulder, arm, finger, leg
35min x 2/day
shoulder, finger, leg
30min x 2/day
shoulder , finger, leg
25min x 2/day
shoulder, finger, leg
25min x 2/day
shoulder, finger, leg
- 20min x 2/day
shoulder, finger, leg, toe
- - 15min x 2/day
shoulder, finger, leg, toe
- - -
Training at hospital (SG)
KP only
3~4 times/week
tipledan
4 times/week
tipledan, hard bed, pool
2 times/week
tipledan, pool
2 times/week
pool
4 times/week
pool, gym (start elbow-crutch, bar, etc)
4 times/week
pool, gym
3~4 times/week
pool, gym
3~4 times/week
pool, gym (start standing up)
3~4 times/week
pool, gym (start ordinary crutch)
3~4 times/week
pool, gym (start parallel bar without hand)
3~4 times/week
pool, gym (start walking without hand with assistant's help)
3 times/week
pool, gym (backward without hand with assistant)
3 times/week
pool, gym (stair training with assistant and bar, crutch without knee-band)
3 times/week
pool, gym (stair training with crutch+bar, one-crutch without knee-band)
3 times/week
pool, gym (not touching parallel bar, both crutch up, stair training using bar, stair training using crutches (only this is with knee-band)
Self-training
自主トレ>

impossible

impossible
30 min/day
wheelchairing
2 hr/day
wheelchairing, electric-bicycle
1.5 hr/day
wheelchairing, electric rollator-walker, in-house bicycle
1.5 hr/day
elbow rollator-walker, elbow crutch, in-house bicycle
1.5 hr/day
elbow rollator, elbow crutch, in-house bicycle
1.5 hr/day
elbow rollator, elbow crutch, 3-wheel bicycle
1.5 hr/day
ordinary rollator-walker, elbow crutch, 3-wheel & in-house bicycles, stand on knee
1.5 hr/day
ordinary rollator-walker, elbow crutch, 3-wheel & in-house bicycles, stand up on knee, floor 10 min.
1.5 hr/day
ordinary rollator-walker, ordinary crutch, 3-wheel & in-house bicycles, floor 30 min.
2 hr/day
ordinary rollator-walker, ordinary crutch, elbow rollator without kneeband, 3-wheel & in-house bicycles, floor 45 min.
2.5 hr/day
ordinary crutch, rollator-walker without kneeband (both elbow and ordinary), elbow rollator without support item, 3-wheel & in-house bicycles, floor 50 min.
2 hr/day
ordinary crutch, ordinary rollator-walker without kneeband (with/without foot-fixer), 3-wheel & in-house bicycles, floor 50 min, stairs by sitting.
2 hr/day
always without kneeband: crutch, rollator-walker with/without foot-fixer, in-house bicycles, step training 30min, floor 40 min.
1.5 hr/day
always without kneeband: crutch, rollator-walker, in-house bicycles, step training 30min, floor 40 min, ski (only March and in full-gear)

mobility (r"olelse)
  ~3 weeks 4 months 8 months 1 year 1.6 year 2 years 2.5 years 3 years 3.5 years 4 years 4.5 years 5 years 6 years 7 years 8 years 10 years
head
頭>
paralized (faintly move = jaw+eyelid) can somewhat move nearly normal (bite tangue often) - - - high-altitude decease at 2000m high - nearly normal (bite tangue sometimes) - - - nearly normal but night-bite is too much - - -
breathing
呼吸>
respirator need sometimes oxygen by breast by breast and abdominal - nearly abdominal - high-altitude decease at 2000m high - - - singing abdominal - - - -
shoulder muscle
肩筋肉>
paralized paralized move arms from side to stomack when lying lift up arms to face lift arms over head/reach neck scratch head and neck reach a part of back scratch back partly shower the hair shower the back - - lift both hand when sitting on knee wipe back of shoulder wipe under shoulder hold upper body more than 4 hours over rollator
shoulder joint
肩関節>
stiff stiff (bending < 90deg) quite stiff (bending < 120deg) foward soft/stiff backward reach neck reach entire neck reach 10cm under neck reach 15cm under neck - reach 20cm under neck - nearly normal for age - - - touch hands in the back in diagonal way
arm muscle
腕筋肉>
paralized paralized can ballance hand lying over ball bend upward (but not twist) bend upward / twist a little bend against 1kg bend against 2kg bend against 3kg bend against 4kg bend against 5.5kg bend against 6.5kg bend against 7kg - - bend against 7.5kg -
elbow junction
肘>
quite stiff quite stiff (bending < 120deg) little stiff (bending < 150deg) can bend, but not twist can pillow on hand can pillow on elbow only twisting problem (don't reach back) - - nealy normal for age - - - - - -
wrist/hand
手首>
paralized / stiff junction paralized / somewhat stiff junction paralized / normal soft junction Can ballance Bend upward Hold book with band, Need hand-fixing band when weighting entire body Don't need hand-fixing band Can move dishes Can stand on ordinary rollator without band for 2 hr Can stand up using hand (entire weight on) Sustain half weight with hand closed point crutch horizontal bring 1L kettle with water, hold crutch more than 30 min pool water into kettle, walk up buss using both bars walk up long-distance buss with bar+shoulder go upstairs with shoulder and narrow bar (cannot set finger in)
finger muscle
指筋肉>
paralized paralized nearly paralized (move faint=thumb) nearly paralized (move faint=thumb+pick finger) nearly paralized (move faint) Ape-claw hand (move little) Ape-claw hand (note: thumb) Ape-claw hand (move 90deg except thumb) Ape-claw hand
Hold light wide staff (like large cookie) using thumb and other finger
Ape-claw hand (thumb is the problem), Can hold ordinary crutch, Can use special chopstick Ape-claw hand (thumb is the problem),
lose fastner of jacket, card game, move chess with both hands, try to wipe when toilet
Ape-claw hand,
Bottom muscle of right thumb starts to move,
Wipe whenever toilet, can use some mobil phones
Klipp bears with scissor, Wipe wound with cotton,
Faint motion of right thumb
Empty urine-bag in the air, File nails Peel a part of shrimp, Crack peanuts using both hands and fingers Handle zipper on sport tights,
Remove crafttape, Cut a string using pencil knife
finger junction
指関節>
quite stiff quite stiff quite stiff quite stiff stiff=thumb+little finger, deformed=little finger stiff=thumb+little finger, deformed=left little finger stiff=thumb, gripping by assistant (thumb=in) stiff=thumb, gripping by assistant (thumb=out) - stiff=thumb 2nd junction, gripping by assistant (thumb=out) - - pain in right thumbs 2nd junction - - By softening beforehand, three fingers reach palm
abdominal muscle
腹筋>
paralized paralized Keep sitting without arm Move little forward-backward when sitting Roll over bed, sit up by twisting body with hand Sit up from 70deg reclining Sit up by twisting body without hand, Lift head with hand Soft landing to lie down Sit up by swinging body V-balance by holding legs, Sit up by polling hand by 10kg (cf. stomach muscle training), move legs when lying on floor (cf. stomach muscle training), lift up legs when lying on floor lift legs to breast when lying on floor lift legs when sitting on floor with two hand - Slowly move on ski with full gears and assistant
leg-waist joint
腰関節>
very stiff bend 90deg during KP bend 120deg during KP bend 120deg during KP bend 135deg during KP bend 150deg nealy normal for age pain in right waist - - - right-leg's joint is severely worn out continuted pain although training seizes - Less pain after setting hard board on wheelchair -
leg muscle
脚筋肉>
paralized paralized balance knee when lying bend knee when lying (not stretch) walk with rollator-walker (cannot stand up) use crutches, stretch against 18kg (both legs) lift one foot when lying, stretch against 24kg (both legs) lift both foot when lying, stretch against 30kg (both legs) Pain in right waist, Stand up from high-chair by setting hand on table, Stretch against 34kg (both legs) Stand up from high-chair by setting hand on knee, Stretch against 36kg (both legs) (cf. floor training), Walk on knee, Stretch against 38kg (both legs) (cf. floor training), Walking on parallel bar without knee-band Defaut for rollator-walker is without kneeband (max 5 km), Muscle pain in knee muscle Up-down stairs with one assistant and bar, Always rollator-walker without knee-band outside home, Crutch without knee-band Up-down stairs with crutch+bar,
Stand against toilet using inside of the knee to make both hand open
Up/down with crutch (one crutch is handing to bar) only with full gear/assistant
Stand up on rollator from flat floor without help,
Short walk with both crutches up
Up stairs in side ways using only one bar
knee joint
膝>
stiff bend 90deg during KP bend 120deg during KP bend 120deg during KP bend 135deg during KP bend 150deg during KP foot almost reach hip foot tatches hip foot reaches hip can sit on low-knee in water - - can sit on low-leg on floor can sit on floor by bending knee full. - -
ankle muscle
足首>
paralized paralized only push toe faintly only push toe faintly only push toe faintly only push toe faintly only push toe faintly only push toe faintly only push toe faintly only push toe faintly slight force on large toe - 3.5 km on elbow-rollator without help-item 1 km on ordinary rollator-walker without help-item 3.5 km on ordinary rollator-walker without help-item,
However, ankle is still unstable
-
rollator-walker
歩行器>
impossible impossible impossible impossible, stand on electric rollator-walker with 2 assistant electric rollator-walker inside (1 assistant), 300m elbow rollator outside (1 assistant), 1km elbow rollator on snow slope (1 assistant) elbow rollator on slow (no assitant) and ordinary rollator-walker inside (1 assistant) ordinary rollator-walker outside (no assitant), 5km ordinary rollator-walker on snow slope (no assitant), one hand with ordinary rollator-walker ordinary rollator-walker 6.5km/1h53min, hills with elbow rollator withhand knee band ordinary rollator-walker 8km/1h50min,
elbow rollator withhand knee band 6km/2h30min
Ordinary rollator-walker 6km/1h12min, 2000m/8'05",
Ordinary rollator-walker withhand knee band 2.5km/1h
Elbow rollator withhand knee band 9km/1h51min
Enmpy urine-bag shelf by sitting on rollator-walker,
4 night stockholm without wheelchair,
Ordinary rollator-walker withhand knee band 8km/1h41min
3 night buss-train trip including cottage without wheelchair,
Ordinary rollator-walker withhand knee band 17km/3h30min
3 night in a hat with rollator only,
20% up on stony trail with assistant,
Half Marathon 4hr 11min, 6800m/61'00"
crutch
松葉杖>
impossible impossible impossible impossible impossible Elbow-crutch inside (1 assistant) Elbow-crutch on snow slope (1 assistant) Elbow-crutch using alternatively inside (1 assistant) Elbow-crutch using only one side inside (1 assistant) Ordinary crutch 10m inside (1 assistant) Altenative or one ordinary crutch Ordinary crutch 4km/2h30min, both crutches up when assistant holds Ordinary crutch 3km/2h, 400m/13min, Few steps with both crutches up Witout knee-band 600m/60min Alternative crutch witout knee-band 3% down and 5% up,
Ordinary crutch witout knee-band 5% down and 10% up
Up stairs with full gear and assisntat (one crutch leaning over bar)
10% down / 15% without knee band
hilly 2.4km/70min
Up stairs with sidewalk with both hands on one bar
pool
水中>
impossible impossible float foward (2 assistants) stand 135cm deep (1 assistant) Catch ball 135cm deep (usig float only), Swim crawl+back+breast Walk 120cm deep Walk 105cm deep without hand,
Swim all stroke
Stand-sit 95cm deep Go to highest stair using bars both sides,
Stand-sit with one-foot 120cm deep
Stand-sit with hands on knee and bar 65cm deep, Standing one-foot 1 sec 95cm deep Stand-sit at lying position at 50cm deep, Standing still with both hands on knee at 65cm deep 1 sec, Stand-sit without hand at 80cm deep Standing still without hand at 35cm deep, Stand-sit with one hand on bar at 65cm deep, Diving is not possible Standing still without hand at 20cm deep, Standing still with hands on knee and bar at 35cm deep, Up and down with both hands on knees at 65cm deep (holding 10 sec), Up and down when sitting on (35+50)/2 cm deep for each leg, Up and down using both hands on 50cm deep, Up and down without hand on 80cm deep, Up and down when sitting on 35cm deep for each leg, Up with hand on know on (35+50)/2 cm deep Stand-lie at 50 cm deep, Stepping 110 cm to 95 cm without hands
bicycle
自転車>
impossible impossible impossible electric-bike in-house bike while sitting on wheelchair in-house bike with full equipment pedal-band & extra band (but without foot-fixer) for in-house bike 3-wheel bike with full equipment pedal-band only for in-house bike (no need for extra band) pedal-band and foot-fixer for 3-wheel bike no band for in-house bike pedal-band only for 3-wheel bike 14km/84 min for 3-wheel bike 11km/67 min hilly for 3-wheel bike 3-wheel bike without any fixed on foot -

life (livet)
  ~3 weeks 4 months 8 months 1 year 1.6 year 2 years 2.5 years 3 years 3.5 years 4 years 4.5 years 5 years 6 years 7 years 8 years 10 years
daytime
日常>
bed bed wheelchair - - wheelchair without foot holder - - wheelchair without foot holder, go lunch with rollator-walker - - - rollator-walker at work rollator-walker at travel - -
assistant
介助>
ICU Move the Rehab Rehab Move to home, 24h/day 20h/day, 140h/week 13~18h/day, 116h/week 13~16.5h/day, 112h/week 12~16.5h/day, 104h/week - - 12~16.5h/day, 100h/week 11~16.5h/day, 96h/week 11~13.5h/day, 88h/week 10.5~11.5h/day, 80h/week 10h/day, 70h/week 9.5/day, 66h/week
eat
食事>
through drop by nurse by nurse Use fork with hand-fixer and bands Use fork & spoon with bands, Can hold sandwitch Sometimes spoon without bands (only icecream) Without bands for light staff, Can bring back empty dish to kitchen Directly hold fork and spoon if well cut (cannot use knif) Hold light cockie using thumb and other finger, Can handle soya Special chopstick, Take out "ready-dish" from refrigerator and warm it with micro Nearly everything with special chopstick, mix sauce/spice when cooking Make tea through pot, place in to/out from freezer Put in and take out from oven, stirring by chopstick, put ice cream on cone Peel slices of boiling meet with chopstick Peel a part of shrimp Turn hamburg, Open beer using lever principle with knife
drink
飲水>
through drop by nurse by nurse by assistant Use special mug with hand-fixer, open 200cc bottle by tooth in night Hold beer-glass without hand-fixer, open 500cc bottle by hand in night Pour water from tap Basically ok except heavy bottle/kettle - - - Nearly all bottles/kettles are ok - - - -
brush tooth
歯磨き>
difficult to open mouth (stiff) by nurse, too little saliva by nurse, too little saliva by personal assistant, too little saliva Ordinary brush with special band, too little saliva Electric brush using both hands, saliva becomes normal Can switch on/off electric brush (cannot set paste) - Can use between-teeth brush from outside - Floss only front - Use stick by both hands - - (Cannot set paste)
washing
洗面>
Nurse wipes a part in special shower-bed (move directly from bed, 4 assistant) on spetial chair (move by lift, 2 assistant) on spetial chair (move by lift, 2 assistant) on spetial chair (moving by gliding-board, 1 assistant) Can wash hand and wipe both hand and face Can wash face Can use kraan with one hand and wipe front top side Can shave but only tin (not soap) Can shower on special shower-bed Can shave nearly all (not soap) Can shower large part body on special chair Can wash large part body on special shower-bed Wash backside of shoulder Wash under hip -
excretion
大便>
not functioning on bed using medicine use special chair using medicine (move by lift, 2 assistants) use special chair without medicine (move by lift, 2 assistants) use special chair (moving by gliding-board, 1 assistant) use special chair (moving by electric rollator-walker, 1 assistant) direct sitting (moving by electric rollator-walker, 1 assistant) - - direct sitting (can move with low rollator-walker, 1 assistant) Can go self if naked at bed and use electric rollator-walker Nearly always wipe self - - Put on pants at some of handicapped toilets by leaning knees against the toilet Put on hard pants at most handicapped toilets
urine
小便>
Urinary catheter (through penis) Urinary catheter Urinary catheter Suprapubic catheter (direct hole to bladder) Suprapubic catheter
Max 30~50ml during excretion
Suprapubic catheter
Max 100~200ml during excretion
Suprapubic catheter
Max 300~400ml during excretion
Suprapubic catheter
Max 300~500ml during excretion
Suprapubic catheter, Can empty the urin-bag Suprapubic catheter
Max 200~400ml during excretion
Suprapubic catheter
Max 100~300ml during excretion
spermatozoons started to soak out in the morning
Suprapubic catheter
Max 50~300ml during excretion
Exchange suprapubic catheter due to infection Sit on rollator-walker to empty the urin bag self Suprapubic catheter
Max 30~50ml during excretion
-
calculus
結石>
- - - - - White floating salt White floating salt, Gastic calculus White floating salt, Gastic calculus, Urethral calculus (ballader stone) - - Cause of the stone is vegetable oil Stone even in winter - - - Decease stones even summer
change cloth
着替え>
naked + blancket all by nurse (taff with stiff body) all by nurse (cannot cooperate) all by assistant (can cooperate) Can put on soft under-shirt Can put arm through shirt, Manage soft pants when lying Manage diaper on bed Many on bed except zipper/button/glove/socks/hard clothes Remove glove using tooth Remove socks Draw down zipper (but not up), Off button when lucky Remove knee-band nearly self Draw down zipper with one hand Put on socks when lying down - Handle zipper on sport tights, Untie shoes (untie soft knot only and tie hard knot only)
from/to bed
就眠>
impossible lift lift gliding-board & lift electric rollator-walker & lift electric rollator-walker & direct to floor electric rollator-walker or direct to wheelchair by rollator-walker or direct - wheelchair to floor through bed bed to wheelchair through bed - - - To rollator even from low bed at hotels via chair -
go outdoor
屋外>
impossible Nurse moves wheelchair Can roll wheelchair on flat Electric wheelchair on snow Roll wheelchair uphill Electric wheelchair, Elbow rollator or wheelchair for flat way less than 500m Elbow rollator, Sometimes crutches or wheelchair Elbow rollator, rarely elbow crutches or cheelchair Ordinary rollator-walker, rarely elbow crutches or elbow rollator - Ordinary rollator-walker, rarely ordinary crutches or elbow rollator Ordinary rollator-walker or elbow rollator without knee-band, rarely ordinary crutches Ordinary rollator-walker without knee band (even at work) Ordinary rollator-walker even for trip Possible to use barred stairs with assistant, Directly with rollator and a assistant up to 2 steps -
cars
車>
impossible impossible Speacial van - Ordinary wagon car using glide-board from wheelchair - Ordinary wagon (including jeep type) using glide-board (1 assistant) Ordinary wagon car from both wheelchair and rollator-walker (1 assistant) Ordinary wagon car
Wheelchair-fitting buss using rollator (1 assistant)
Low van with 2 strong assistants - Low van with one assistant - Ordinary buss and subways with help (sit on floor when getting off) Long-distance buss and trains with help (sit on floor when getting off)
Start using buss for work sometimes (sit on floor when getting off)
Defaut is buss with assistance, even train abroad is possible
read
読書>
impossible due to bouble-sight Nurse hold book Read newspaper using mouth Light books (turn page by using entire shoulder/hand) Turn page by using entire hand, can hold newspaper Take from bookshelf Move with wheelichair holding a book Can turn pages by only by entire hand - - - hold light book with one hand - - - Turn pages using fingers
PC (MaC) impossible impossible Type useing mouth-stick Type by lifting shoulder Type by lifting elbow Type by one finger each hand - Alt-Shift with pick-ring fingers Pick & middle fingers for limited case Two fingers for limited case (thumb-middle, pick-middle, pick-ring) Manage DVD Connect cables except internet - Connect cables - Can push start bottom of iMac
trip
旅行>
Ambulunce with respirator Ambulunce with respirator Bed-holding car - Tromso (buss 2 night, 1 assistant) Helsinki using airplane (5 night, 8 hours one way, 1 assistant) Norway day trip by ordinary car Colorado, USA (7 night, 26 hours one way, 1 assistant) - Japan (9 night, 29 hours one way, 1 assistant + local assistant) Stockholm with local assistant only (3 nights) Non-handicap hotel at car distance (4 nights) Day trip to Non-handicap university
France, no bar in toilet at all (6 nights)
With rollator-walker, Finland with local assistant only Buss-train trip with rollator-walker Possible with buss+train, Only local assistant if go to Japan
work
仕事>
impossible impossible just attend seminers 4~5h/week 20h/week 20~30h/week 30h/week - - - - - - - - -
  ~3 weeks 4 months 8 months 1.0 year 1.6 year 2.0 years 2.5 years 3.0 years 3.5 years 4.0 years 4.5 years 5.0 years 6.0 years 7.0 years 8.0 years 10.0 years


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